A selection of resources from around the web. I provide this not as an endorsement, but to save you time googling. I am not a doctor and none of this should be construed as medical advice, or a substitute for medical advice.
Medical Organizations
National Vulvodynia Association www.nva.org
Patty Brisben Foundation for Women's Sexual Health www.pattybrisbenfoundation.com
International Society for the Study of Women's Sexual Health www.isswsh.org
International Pelvic Pain Society www.pelvicpain.org
Section on Women's Health (Physical Therapy) www.womenshealthapta.org
The Center for Vulvovaginal Disorders www.cvvd.org
International Society for the Study of Vulvovaginal Disorders www.issvd.org
Vulval Pain Society, UK www.vulvalpainsociety.org
Pudendal Neuralgia Association www.pudendalassociation.org
Women's Health Foundation (all about pelvic health) www.womenshealthfoundation.org
Chronic Pain Research Alliance www.tmjds.org/drupal/
Physical Therapy Websites
Beyond Basics Physical Therapy www.beyondbasicsphysicaltherapy.com
Sullivan Physical Therapy, Austin TX www.sullivanphysicaltherapy.com
Foundational Concepts, Kansas City MO www.foundationalconcepts.net
Avila PT, NC www.avilapt.com
Pelvic Health & Rehab Center, SF CA www.pelvicpainrehab.com
Pelvic Support Physiotherapy, Ottawa www.pelvicsupport.com
EMH Physical Therapy www.emhphysicaltherapy.com
Clear Passage www.clearpassage.com
Fusion Wellness PT www.fusionwellnesspt.com
Proaxis Therapy Pelvic PT www.proaxispelvicpt.wordpress.com
Tanner Therapies, LLC www.hollyctanner.com
Entropy PT www.entropy-physio.com
Restore Physical Therapy and Wellness, Hadley MA www.restorewell.com/womens-health.html
Forefront Physical Therapy, Oakland CA www.forefrontphysicaltherapy.com
UCSF Medical Center Chronic Pelvic Pain Center www.ucsfhealth.org/clinics/chronic_pelvic_pain_center/
Liz Miracle www.miraclept.com
Sarton Physical Therapy www.pelvichealing.com
Tianna Meritage-Reiter www.mindbodymovement.org
Western Medical Providers Other Than Physical Therapists (got any more suggestions? help me out here!)
San Diego Sexual Medicine www.sandiegosexualmedicine.com
Dr Rose Hartzell, LMFT, Certified Sex Therapist www.drrosehartzell.com
Dr John S McDonald www.pacificpelvicpain.com
Dr Joanne Badger www.stanfordhealthcare.org/doctors/b/joanna-badger.html
Yoga for Pelvic Pain
Dustienne Miller www.yourpaceyoga.com
Leslie Howard www.lesliehowardyoga.com
List of teachers certified by Leslie Howard, by state: www.lesliehowardyoga.com/certified-teachers-for-pelvic-floor/
Tianna Meritage-Reiter www.mindbodymovement.org
Shelly Prosko, Canadian PT/yoga teacher who does pelvic pain workshops www.physioyoga.ca
Womb Yoga with Uma Dinsmore-Tuli (not pain-specific, but totally awesome and relevant) www.wombyoga.org
"Yoni Shakti: Freedom and Power for Women through Yoga and Tantra" 650 page book by Uma Dinsmore-Tuli
Pelvic Pain Coaches
Gail Kenny www.gailkennylifecoach.com
Lorraine Faehndrich www.radiantlifedesign.com
Abigail Steidley www.abigailsteidley.com
Sarah Kennedy www.sarahjkennedy.com
Support & MeetUp Groups
Yoga for Healing Pelvic Pain - SF Bay Area (my group) www.meetup.com/PelvicWarriors/
Orange County Chronic Pelvic Pain Support Group www.meetup.com/Orange-County-chronic-pelvic-pain-support-group/
Support Group for Women Who Experience Pain During Sex (Berkeley, CA) www.meetup.com/Support-Group-for-Women-Who-Experience-Pain-During-Sex/
Charlotte Interstital Cystitis Support Group www.meetup.com/Charlotte-Interstitial-Cystitis-Support-Group/
Oregon Vulvodynia Support Group www.meetup.com/Oregon-Vulvodynia-Support-Group/
Vulvodynia Support Group (Atlanta GA) www.meetup.com/Breaking-the-silence-about-female-pain/
Long Island Women's Health Healing Group www.meetup.com/Long-Island-Womens-Health-Healing-Group/
Downtown Vancouver Chronic Pelvic Pain Support Group www.meetup.com/Downtown-Vancouver-Chronic-Pelvic-Pain-Support-Group/
Orlando Women's Health Events www.meetup.com/Orlando-WHevents/
Online forum www.vulvodyniasupport.forumotion.net/
Link to a closed Facebook group: www.vulvodyniasupport.forumotion.net/t2043-secret-facebook-group-other-forums?highlight=facebook
Blogs Written by Patients
Some of these blogs are current and updated regularly, while others are more sporadic. If you like their blog, be sure to subscribe and let them know that you appreciate their stories!
When Sex Hurts There is Hope www.whensexhurtsthereishope.com
That Sexual Healing www.thatsexualhealing.wordpress.com
Danielle Lavieri www.daniellelavieri.wordpress.com
Oklahoma Women's IC & Pelvic Pain Support www.ichopeok.blogspot.com
Pretty with Pelvic Pain www.prettywith.com
The Apprehensive Vagina www.theapprehensivevagina.wordpress.com
Mad Peach www.madpeach.blogspot.com
Sky Circles www.sky-circles.blogspot.com
Life with Vulvodynia and Pudendal Neuralgia www.lifewithvulvodynia.blogspot.com
Vagina Haiku www.vaginahaiku.blogspot.com
Whoa is my Who-Ha www.whoaismywhohaa.blogspot.com/
The Three Amigos www.the3amigos-vulvarvestibilitis-pfd-ic.blogspot.com
Whispering Butterfly www.whisperingbutterfly.wordpress.com
Blogs Written by Care Providers
The Hoo-Hoo Whisperer http://hoohoowhisperer.com/
Blog About Pelvic Pain www.blogaboutpelvicpain.com
Pelvic Pain Rehab www.pelvicpainrehab.com/blog
Alliance for Pelvic Pain www.allianceforpelvicpain.com/blog.html
Pelvic Wellness Center www.pelvicwellnesscenter.com/blog
What's Up Down There? www.whatsupdownthere.blogspot.com
Beyond Basics PT www.beyondbasicspt.wordpress.com
Pelvic Guru www.pelvicguru.com
Sue Croft Physiotherapist www.suecroftphysiotherapistblog.wordpress.com
The Pelvic Chronicles www.foundationalconcepts.net/the-pelvic-chronicles
EMH Physical Therapy www.emhphysicaltherapy.com/blog
Talli Rosenbaum, sex therapist www.tallirosenbaum.com/en/blog
Proaxis Therapy Pelvic PT www.proaxispelvicpt.wordpress.com
Sarah Kennedy "Viva la Vulva" www.lifewinsagain.com
Studies
"Prevalence of Symptoms Consistent with a Diagnosis of Vulvodynia" American Journal of Obstetrics and Gynecology (AJOG) Vol 210 Issue 1 p. 40.e1 - 40.e8, January 2014.
"Prevalence and Demographic Characteristics of Vulvodynia in a Population-based Sample" AJOG Vol 206 Issue 2 p.170.e1-170.e9 February 2012.
"Female Sexual Function and the Pelvic Floor" Expert Reviews in Obstetrics & Gynecology. 2009;4(2):165-178. www.medscape.com
For more research, go to www.ajog.org or become a member of the National Vulvodynia Association at www.nva.org
Products
Pelvic Pain Solutions www.pelvicpainsolutions.com
Pelvic Track App www.pelvictrack.com
Vuvatech Magnetic Dilators www.vuvatech.com
Thinx "Period Panties for the Modern Woman" www.shethinx.com
Dear Kate (high-tech period panties) www.dearkates.com
Go Commandos, the underwear alternative (adhesive cotton crotch without the panties) www.gocommandos.com
Additional Resources
Great interview with a wonderful woman who just happens to live with painful sex, www.jesslively.com/jessecoulter/
Sex, Science, and Nature www.sexscienceandnature.com
"Why Things Hurt" Lorimer Mosely, TEDx Adelaide https://www.youtube.com/watch?v=gwd-wLdIHjs
Urological Health News (also has articles on pain) www.urologicalhealthnews.com
Fun, informative workshops on the female pelvic floor www.lesliehowardyoga.com
Pelvic Zen Radio www.blogtalkradio.com/pelviczen
Pelvic Messenger Radio www.blogtalkradio.com/pelvicmessenger
Pelvic Pain Support Network (UK) www.pelvicpain.org.uk
Cure Together www.curetogether.com/vulvodynia/symptoms/
Our Bodies, Ourselves www.ourbodiesourselves.org/health-info/vulvodynia/
HysterSisters www.hystersisters.com
VulvaLoveLovely Etsy Shop www.etsy.com/shop/VulvaLoveLovely
New York Times article http://nyti.ms/1o6PLSZ
Certified Pelvic Rehab Practitioners www.hermanwallace.com/certified-pelvic-rehabilitation-practitioners
Body in Mind: Research into the Role of the Brain and Mind in Chronic Pain. University of South Adelaide, Australia. www.bodyinMind.org A great website with lots of easy-to-understand articles on chronic pain.
YatraYoni.com is a peer support website and does not intend to take the place of the relationship between patient and personal physician.
Resources above are collected for your convenience only. They are to be used at your own risk.